Reply To: Crushing Sensation? Teeth Pain?

GH I totally agree he should be receiving treatment. Steroids were tried. IVIG caused the aseptic meningitis (prior post). When you currently don’t have insurance or a neurologist that supports plasma exchange you suffer, which I find unacceptable. Also, I find it quite insulting to my husband that once we no longer had insurance the neurologist went from seeing my husband every three months to “call me if you have questions”, let’s just kick him when he’s down. I have lost respect for the medical community and the “system” in general. This is our reality. My reason for posting is to try and compare my husbands symptoms with others. I see you had GBS and have had successful treatment. Congratulations! We have not been as fortunate.