Reply To: Still Waiting
Kirkly, I’m so sorry to hear about your plight, especially with what seems to be a lack of timely responses from your doctor. May I ask what city you live in? Perhaps our forum members can recommend other CIDP specialists in your area.
Some CIDP sufferers have been helped by taking Alpha Lipoic Acid (ALA). This is a non-prescription dietary supplement that is available in the vitamin section of many stores. I use the following product and take 1200MG per day: http://www.supplementwarehouse.com/viewitem.asp?idproduct=162545
A clinical trial was completed earlier this year in Oregon to exam how ALA treats CIDP. We are still waiting for the researchers to post their findings here:
http://clinicaltrials.gov/ct2/show/NCT00962429?term=lipoic+acid&rank=13