Reply To: Pain Management HELP!

December 29, 2013 at 3:40 am

Pain seems to be fairly common with us GBS/CIDP sufferers. I’m lucky to not have had too much pain. Following is a summary of what some other members have reported:

Some say 150 MG of Lyrica (Pregabalin) can do wonders for pain. This is similar to Gabapentin (Neurontin), but members believe they get better results with the Lyrica.

Another member reported that this spray has helped greatly: http://www.amazon.com/Salonpas-Pain-Relieving-Spray-Ounce/dp/B00759WR7I/ref=pd_sim_hpc_18

Fibromyalgia pain can sometimes be similar to CIDP pain and a new medicine called Savella (Milnacipran) has proved successful in reducing that pain: http://www.mayoclinic.com/health/milnacipran/AN02019

A few members have looked into this device: http://www.gbs-cidp.org/topic/spinal-cord-stimulator

According to what I just read on-line, Aseptic Meningitis is usually caused by viruses (e.g., enterovirus) and most people can recover from it. It does have implications for treatment with IVIg. SCIg is said to be a better alternative for those with Aseptic Meningitis AND suffering from CIDP. Please see the following publications for more information:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3296420
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2817783

Perhaps some of the above is worth exploring to help your husband better manage his pain and get treatment for his CIDP. I hope he can improve soon so you two can have a little more normality back in your lives.