Reply To: A few questions? New and scared

December 24, 2013 at 4:52 am

Gsim, the rapidity of progression of weakness is one thing for which there is a great deal of variation. For GBS, onset to maximum is no more than eight weeks, and is typically about four weeks, but can be only a day or two. CIDP often follows a slowly progressing course over months to years. Mine was atypical and was originally diagnosed as GBS. I went from onset to inability to stand in one month. I started using a wheelchair just before my first office visit with a neurologist. He put me in the hospital the same day.

If you can notice loss of strength from day to day, or even over the course of a few days, you cannot wait four months to see a neurologist again. If you have not already taken a medical leave of absence from work for this, you should do so soon, so you can concentrate on getting proper medical attention for this. If you are losing strength, you will forced to leave work soon anyway. Note that earlier treatment generally leads to better recovery.