Reply To: A few questions? New and scared

December 24, 2013 at 3:21 am

GH, how long does it take to get from onset to the point of not walking? I worry I will be in a wheelchair by the end of the 4 months and by then it will be too much damage.

I am losing strength noticeably. I can still walk but tire easily. Everyday activities make me feel like i just ran a marathon.

My neurologist suspects CIDP mainly because of my post-vaccine onset and my symptoms all fit. Numbness, tingling, prickling and burning skin, muscle twitch and ache, weakness and shakes in both prox and distal, fatigue. All typical CIDP. None of my tests is conclusive.

Jim-LA, stevemckean, JohnQ and harryswope, thank you for sharing your experiences. They are very helpful to me. It is especially good to know follow-up IVIG doesn’t require 5 days, only 1 or 2.