Reply To: A few questions? New and scared

December 23, 2013 at 4:01 pm

My symptoms started shortly after a flu shot. At first only numbness and tingling of hands, feet, arms and legs. Then skin burning sensation and muscle twitches everywhere. Then muscle pain and soreness, feeling fatigues. Then muscle weakness, especially in arms and thighs so far. But calves and everywhere too. Just feeling sore and tired after even the most basic daily activities. The progression has sped up lately. Right now my hands are permanently numb and burning, and muscles constantly ache and twitch, and my arms and legs are wobbly and shaky 24/7.

NCS and EMG and Spinal tab were done a bit too early (I hadn’t had muscle weakness then) and they were all “inconclusive”. My neurologist is not familiar with CIDP, (he is more an MS guy) and he thinks it’s possibly CIDP but he wants to do repeat tests in 4 months to be sure. In the meantime, he will only give me pain medicine, nothing else. I am not sure waiting 4 months is a good idea!