Reply To: A few questions? New and scared

Get savvy.
http://neuromuscular.wustl.edu/antibody/motpn2.htm

Of course you won’t understand it, but try, and take notes as you learn.

Extreme exercise relieves all my symptoms when the course of IvIg relapses during my loading/adjustment phase. And I mean REALLY extreme exercise! I was the Iron Man type until nerve problems (CIDP) gave me a foot drop five years ago.

Be patient. The therapies work.

Start a journal. You’ll need it.

And you’ll need full insurance coverage for IvIg as the cost is astronomical!!! SO far, $185000! with $130000 to go the full loading course, adjustments and maintenance… this is for one year. However, my insurance co-pay, at the end of the therapy, will be about $800.

Good luck. Email me if you want my pov.