Forums

Forums Forums CIP / CIDP So Frustrated about my knee

This topic contains 8 replies, has 0 voices, and was last updated by  ConnorZmom 5 years, 7 months ago.

Viewing 9 posts - 1 through 9 (of 9 total)
  • Author
    Posts
  • #7633

    ConnorZmom
    Member

    Today I went to the dr b/c I fell right smack on my knee…Monday …
    It has been swollen and painful ever since. I was having probs just below the knee before I fell…only when I’d first get up.
    Now it KILLS when I first get up to walk…hurts if I sit with it bent too long…hurts all the way down the sides to the bottom of my foot.
    It is very swollen at the knee and above and the entire calf.

    The dr I saw was the partner and not my normal GP. He’s kind of fuddy duddy.
    He did a minor exam of turning my knee and said he didnt think I tore anything but that he was 99 percent sure I fractured something. He said since I’ve been walking on it, keep as I’m doing, ice it, etc. He also said it is hot to touch…and it is. Why ?
    He sent me for an xray but there was no radiologist to read it and the tech wouldnt tell me but after the xray she was treating me like a fragile gem. Helping me big time. Gave me the impression that she saw something wrong.
    She wanted to be sure the radiologist that was to read it later had my dr’s pager number so that I would be called asap.

    He never called and I dont know what was on that XRAY ! Probably nothing ?
    All I know is that it hurts and I have things to do ! The last weekend before Christmas, are you kidding me ! :mad:

    It’s my own fault, I was walking too fast without my cane. But, here I am to whine about it all after you all warned me. Sorry :rolleyes:

    anyone ever fracture a bone in the knee or just below it and what did you do? I wont know anything now till Monday.

    I am so bummed out.

    I did get most of the Santa gifts wrapped tho. I”m tired and going to bed. No strength to even get in the shower.

    wish me luck ?

    Stacey

    #78365

    L Cala
    Member

    Oh honey,
    It just never stops for you does it? You poor soul. I hope Santa is real good to you and leaves you his sled and deer to drive you around.:p Seriously, I hope this gets better for you. Hang in.
    Linda

    #78367

    TJRPT6
    Member

    Hey Stacey,

    Ouch! Sorry your having such a rough go of it. Your doing a good job tring to keep up the pace but paying a toll for it. Take it easy on the knee over the weekend. You need to get that localized inflammation down before your kneefills up with fluid or worse yet, blood.

    I banged my knee workin on a plane 24yrs ago, it got red and hot. I kept walking on it cause I was young and dumb. well, next thing I knew, the bursa filled with blood too thick to draw with a needle so the knee operation happened. And my first sign of CIDP or MMN. The RH peroneal became numb and stayed numb to this day. I alway attributed it to the massive swelling that occured, but it was what is now one of my conduction blocks. This was when I found my current Dr. of 24yrs. He saw me limping but had no appt. and took me in under his wing ever since.

    Lesson being, a sore knee is nothing to mess around with. Baby it! All Weekend if necessary. No deep bending keep it staight as possible and elevated with ice, and if you can, take aleve or stronger anti inflammatory.
    Thats what I would do. Get your result on Monday. Even if its not fractured
    your not out of the woods until the inflammation goes down.

    Good Luck KIDDO!

    #78369

    Julie
    Member

    Plus if you did chip a bone and keep dancing around you run the risk of getting that little piece of bone lodged someplace where it can cause excruciating pain and/or damage. The warmth/heat is just the inflammation – you hurt something and your body is trying to fix it and so is sending lots of necessary ingrediants to that area. Tim is right, you don’t want it to get too swollen so using a bag of frozen peas off and on will help keep it under control. Peas are the best because they mould to the shape of your knee – get two bags and keep one in the freezer while the other is on your knee. Let it rest and heal this weekend if you can stand it, if you get hyper take a Benedryl and put a movie on – that will keep you seated. On Monday I expect you will hear back and they will either say “you bruised the bone”, “hairline fracture – stay off of it” or “come get an MRI” so they can see if something is torn or a piece of bone is where it shouldn’t be. Whatever they say, it’s just a small bump in the road and it’s also a good excuse for you to start carrying that cane – you did hurt yourself after all and people would expect you to need a cane or crutch or something.

    I’m sorry you got beat up in your fall, I’ve done that to myself even before I got CIDP, now I have to be extra careful because my clumsiness has been magnified but I still don’t let it stop me from doing what I want. :)

    Julie

    P.S. I guess it’s implied but Yes, I’ve fallen and chipped bones in/around my knee before – a couple of times, most of the time it gets better on its own.

    #78373

    homeagain
    Member

    2years ago, rite before Thanksgiving, fell in the house and hit my knee on the bed frame. Managed to get up, find my walker and hobble into my resident ‘chair’. Where I sat until DH came home. Got literally hauled to a satellite ER and had the pictures taken. Chip of the knee cap-put in a leg imobiliser [lots of velcro!] and told to see doc ASAP. Got the orthopedic the next day where another X-ray was done [should be 'glowing'?] and was told to do the ice and elevate thing.
    Follow up visit two weeks after that? They found that I’d fractured the bone below the knee also-at the joint. In a wheelchair around the house and walker going out [rarely] for two more months, then PT. The PT really helped my overall CIDP balance problems more than the knee itself. I was overall upset as I’d had knee surgery on this same leg 4years before CIDP.
    Remember always that hairline fractures usually don’t show up rite away on film. It takes the rebuilding of calcium into the cracks to show a bright white on those films.
    If you can find a sports knee brace [the thick foam, w/supports at the knee and much softer than the imobilizers, get one. They don’t rub near as much and are much easier to adjust overall. Don’t despair. It WILL get better.

    #78374

    Jim C
    Member

    Stacy,
    I agree with everything that has been said. I would suggest something like an Ace rap, an ice pack and keep the knee elevated and immobilized for the weekend. [I know easier said than done in your situation.]. I check out what was recommended for a knee injury – RICE (rest, ice, compression, and elevation). That is until you can get the x-ray read and get competent medical opinion.

    I did something like you did back when I was young and foolish. Now that I am no longer young I am paying for with every step I take. Coupling that with the CIDP makes for a very interesting time. Let’s just say my hockey days are definitely over. :rolleyes:

    #78407

    ConnorZmom
    Member

    Thank you guys !

    Thought I’d give an update. I am hurting tonite but not too bad. It DOES still hurt. It hurts when I go down steps or up them and when I walk it’s a feeling of being tight. It aches more than stabs unless I bend it too far. What did it feel like for you all ?

    I went to a church Christmas program today…it was excellent…We sat the whole time for two hours then out to dinner. Came home and then took my moms dear friend to two stores and now I’m home, showered and ready to ice.

    It has not hurt that bad today…I dont understand. But, I’ll take the less pain.
    I’m not getting around real good tho and it aches in my calf and side and bottom of my foot, too. The swelling is still pretty bad. I dont want to end up with it being like Tim. Yikes.
    No call from any Dr’s. go figure.
    I dont know if it’s fractured, chipped, what…torn maybe ? Not real sure. I know there is something b/c of all the times my clumsy butt has fallen, I’ve never quite had this kind of punishment !
    I do have a great ice bag but the peas trick is a good idea Julie.

    Tomorrow I have only one errand to run. It’s going to be brutally cold.
    We have to finish our Christmas candy but I can sit while doing that. I have to clean house , too and…that’s the prob. I have to cook for 17 in laws next Saturday. I also have yet to shop for all the food. :eek:
    I will take things alot easier tho and will demand help from hubby and step daughter with the house. Nobody does things like I do tho. Beggers cant be choosers, right ?

    I had two hand burning episodes this morning when I woke up. UGH. THAT HURTS SO FLIPPIN BAD ! I’ll take constant knee pain forever if I could trade it to stop those burning spells. I pray each night before I go to sleep to please let me sleep thru the night. Tonite I will pray to please stop this burning. I think I was praying the wrong way.

    Time for bed. Stay warm. The mercury is going below 0 in Omaha tonite.

    Stacey

    #78408

    ConnorZmom
    Member

    Homeagain, I just re-read your post. YIKES. You really had a mess on your hands. I sure hope I dont end up like that. The dr told me that since I’ve been walking on it to just keep walking on it. I sure hope he didnt tell me something wrong and I’m gonna be sorry for it.

    thanks for sharing your story.

    #78425

    homeagain
    Member

    that is a very good sign. Probably an overstretched tendon or cartilidge. Be careful how you walk, try and walk straight? Easier said than done, but once you get into bad walking and posture habits, well things compound on other issues and I would ask, no, DEMAND my docs for PT. You likely wouldn’t start until after the new year tho, once all the swelling goes down. PT can help you avoid keeping bad walking habits that compensate for the pain and can strengthen the surrounding muscles/tendons/cartiliges to adapt to any damage you mite have. Seeing a good orthopedic surgeon is a good bet – It was my ortho I had called for help – I by-passed my GP as I knew she’d just refer me to the ortho? DUH? The ortho knows knee joints better than any other doc, and since we have to walk? Well, go to the gurus…. Use your leg as much as possible, because if you don’t? You will lose what strength you have, if not lose some anyhow-BUT be cautious, if it protests, stop. Therefore, the PT stuff once you’re ready will help immensely. It can be like learning how to ‘walk’ all over again! I’ve done this three times so far [only one before CIDP, but a biggie] and I always keep in mind that docs don’t THINK of the PT! But, I’ve never had a doc say no to it when I’ve asked.
    I won’t go into details about housekeeping with bum legs/feet tho…just that I did 1/2 the living room and napped, the other 1/2, another nap…etc. Washing the special dishes etc I try to do a week ahead and in bits. Lots of bits add up if you keep at it.
    Do Lidoderm patches help with this hand pain at all? They can deaden things pretty well at times-tho, at others they don’t do a thing. Worth a try?
    As others have said? NO deep knee bending? And, NO clumsiness are allowed for at least three weeks! Hope this all helps!

Viewing 9 posts - 1 through 9 (of 9 total)

You must be logged in to reply to this topic.

  • Centers of Excellence