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Forums Forums GBS – Adult memory loss

This topic contains 18 replies, has 16 voices, and was last updated by  dandrews1138 8 months, 1 week ago.

Viewing 15 posts - 1 through 15 (of 19 total)
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  • #8603

    lovemyford
    Member

    can anyone shed some information; possibly, my question; has any member heard from others suffering from memory loss?

    #88770

    synthia
    Member

    i dont know, i cant remember……

    im sorry its not funny, just trying to make u smile……

    i find myself struggling sometimes to remember things, i ask people questions but dont really pay attention to the answer so i dont remember later, or phone numbers i once knew i draw a blank…… i hope u find the answers ur looking for

    #88773

    lovemyford
    Member

    thank you for the smiles. I become quite frustated at times as a result of memory loss. As for the quote; I’m quite happy living in the moment. as that is what I have at the present time.

    #88776

    ms. judy
    Member

    Hi there! Read your post and thought I would tell you that just yesterday,
    when I got to work, after I logged in, I checked my mailbox, went to my room and looked around-my purse was no where in sight! I thought, “Oh I must of
    left it in the lounge when I logged in!” Went back there, no purse! OMG I
    thought, someone must have picked it up. After searching for several min.
    my friend said did you leave it in your car? NO, I’m sure I brought it in! But
    after the fifth time of walking in circles I decided to check my car. There it
    was on the seat with my keys hanging out of it, and guess what, my door
    was locked. After calling my husband and feeling like I just had another blonde moment, I told my friend that I was seriously getting worried about
    not being able to remember anything lately and was wondering if it had to
    do with my CIDP. I feel like I live in the state of perpetual confusion!!! You’re
    not alone my friend, sorry.
    Ms. Judy
    CIDP w/anit-mag:confused:

    #88781

    J.Dennison
    Member

    [QUOTE=lovemyford]can anyone shed some information; possibly, my question; has any member heard from others suffering from memory loss?[/QUOTE]

    Where do I begin….my short term memory,word recollection, and spelling have all become awful, I also now have dyslexia like spelling errors when typing.????? Never had this until recently, but think there is a cognitive issue for many sufferers of CIDP, BGS, MS. : (

    #88790

    lovemyford
    Member

    I would like to thank those of you that have replied. You have shared your concerns and I feel not so alone. I’m having trouble researching this problem. I cannot locate any info in regards to memory loss within GBS.

    #88870

    There is no data that I have found other than from the wonderful people here on memory and “brain” related issues after GBS/CIDP. BUT, there is a thread all about the things we have experienced with brain fog, memory loss, even a feeling of a change in our IQ’s.

    I would love to see research done in this area, but what is the baseline? I mean they can tell if we have nerve damage because the machine says we do based on the “normal” reaction of normal nerves….but it doesn’t know what our [I]individual[/I] baseline to begin with was. With the memory problems etc, since they do not know how we were before, there is no way for them to tell us whether or not we really have suffered some sort of problem because of GBS. And nothing shows up on CT scans or MRI’s.

    I know I went from feeling fairly confident about learning something new, wrapping my brain around things, and remembering where I put something or why I walked into a room…to not being able to recall a word I am trying to say, where my keys are, what I did with such and such, and often ask my kids in the car “where are we going?”. I also feel that my 132 IQ dropped way down! Some days I feel so stupid it makes me embarrassed and I want to cry.

    You are not alone.

    #88882

    Jethro
    Member

    Dear Friends:

    I was in a Rehab Facility located in Jeffersonville, IN. This is just accross the Ohio river from Louisville, KY. When I was able to use my slide board my wife could check me out for one hour on occasions. I love fish and each time we would check out at lunch time and go to a place called KingFish. Rosemary would get a fishbox for two and we would drive to a park on the waterfront and have our lunch.

    I have been on those roads hundreds of times, but I could not remember the streets, turns, etc., or how to get to the riverfront park. Knowing that I had a blood staph infection (with GBS and other diseases), pneumonia and that my temperature of 107.9 with BP of 44/0…I was thinking that maybe the high temperature may have caused some brain damage. And I could not remember how to get back to Rehab. This continued each time we went out, and about 2-3 months after I was released and came home.

    I don’t think I have brain damage, however my speech is at a slightly slower pace than it was. My long and short term memory is very good and other than maybe the first 7-8 months of memory “fog” things are pretty much normal.

    Regards to all.

    Jethro

    #88897

    zanna
    Member

    Memory loss, i can relate to that . Peoples names words,i was walking around in circles looking for my car keys starting to panic finally found them on the washing machine lid ,no idea why i put them there and dont remember doing it. I take my tablets first thing in the morning and there are days i wonder if i have or not.Forgot which aisle the rice was in at the supermarket and ive been shopping there for 20 years. Things like that happen most days and my husband thinks ive lost the plot but i told him thats what gbs has done to me. Does it get better with time ?:)

    #88907

    Rob
    Member

    Greetings All,

    Boy can I relate! Last weekend I went to blockbusters to rent a movie. When I got home with it my wife said that we watched that movie last month.

    I’m almost 8 years post with the usual residuals. I, like many of us, take a lot of MEDS. I believe that’s the reason for my memory loss. What do you think?

    Take the rest of the day off,

    Rob

    #88929

    Jim C
    Member

    I had to keep scrolling up to the top to the page to see what the topic was. Does that give you a hint? There is an upside to the whole issue. I cut my library down to three books and eleven videos. By the time I’m finished with the last book, and the last video I forgot what the first was was about so I can start the whole cycle over again :D

    #88933

    J.Dennison
    Member

    [QUOTE=Jim C]I had to keep scrolling up to the top to the page to see what the topic was. Does that give you a hint? There is an upside to the whole issue. I cut my library down to three books and eleven videos. By the time I’m finished with the last book, and the last video I forgot what the first was was about so I can start the whole cycle over again :D[/QUOTE]

    Glad to know I am not alone……my memory is shot, movies, books, any short term memory stuff, is virtually gone unless I am prompted, once prompted I can usually answer correctly/remember. Now my spelling and word retieval is lost too… :(

    #89029

    Caroline50
    Member

    Yeah try having GBS and menapause! Double whammy for me. Keep on smiling:)

    #89038

    From everone’s experience, post, and what I see in Kev, I would say they are wrong, there IS CNS involvement. Or maybe stress because of the gbs/cidp causes depression/anxiety which causes the emory issues, or maybe my question of my latest wacky idea (leaky gut) causes it, as memory/concentration issues is one of the symptoms. I have no idea, but I am so sick, frustrated and confused about all of this crap. I just want a re-do and I want this crap to be out of our life. I am sick of a 13 y/o boy having maybe 2 good days out of a week, that is crap. What is the point!
    DAwn

    #89453

    jojo87
    Member

    I read all of the posts with this thread and can relate. first they attributed my memory issues to the drugs i was taking. Now i am off most of them but still having memory issues. I constantly have short term memory issues. it really frustrates me and my parents(whom I live with). My sisster deals with it by writing things down or calling me constantly. I pick up her children from shcool sometimes and get lost. At least on the way home lmy nephews can give me directions. I am lucky that i can drive right now. Cidp is progressing though. I find that i constantly ask what day it is. After 24 hours the memory from the day before is gone. i think it frustrates those around me more than myself. I guess i am used to it now. My boss at work has learned to adapt to this issue.( i work 10 hours a week at the mental health association) I have tried writing things down but find that often i dont know what the note means. The doctors dont seemed concerned, I have had brain scans and everything looked ok. I am waiting on a kidney stone to get taken care of then they will start IVIG. I have not had it before. I had GBS now CIDP. With GBS was paralyzed to my eyes and now numb and tingling from the chin down. I walk with a cane or forearm crutches even a walker sometimes. I see a neurologist on a regular basis. I guess we will see if the ivig will make a difference soon.

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